Its that time of year again…the Cystic Fibrosis Great Strides Walk is coming up on June 6th and fund-raising has been at the back of my mind for the past three months. I know money is tight and there are many more important things in life than donating money for a cause for most of you. Well, Jayden’s life is about finding a cure in her life time. We are very hopeful since there is a new study happening right now that could cure Jayden of this genetic disease.

For those of you who haven’t heard about Jayden before here is a little bit about her. Jayden was born at 32 weeks 5 days with complications. She was rushed to Primary Children’s Medical Center when we was 3 days old for surgery. The doctors we able to find that Jayden had a maconium illius (part of the intestines we plugged with poop, and had twisted up a died off). The doctors told us Cystic Fibrosis was a possibility after her surgery. Jayden’s test results came back positive when she was 5 weeks old. We cried many tear over it and wondered how we were going to be able to take care of her. The first year of life was rough. She had reflux so bad she would choke sometimes. At one she weighed in at 13 pounds and her doctor who had been suggesting a feeding tube insisted we get one right away. Jayden had a feeding tube placed at the end of August 2006. In November, the week after Thanksgiving, she was admitted to the hospital for Rotavirus. In November of 2007, Jayden was fitted for The Vest, which would help do her breathing treatments for her instead of us pounding on her. We are in love with the vest!! In October of 2008, Jayden started on a Saline Solution to help with her lungs and airway, after having 8 colds from July to October, which required steroids every time to get them to go away. It has been a challenge dealing with illnesses, hospital visits and stays, feeding issues, sleeping issues, insurance problems, breathing treatments, and medicine needs. As of right now, Jayden is healthy, weighs 29 pounds and is very happy. She takes 10-12 pills a day, 8 other medications or health needs, does at least two 30 minute breathing treatments, receives 3 day time feedings through her G-tube, and all night long as well. We are not complaining about this. We know nothing different and therefore are not saddened by what we do. Jayden is perfect to us and we love her. She is a joy to be around. Jayden loves gymnastics, playing outside, watching movies, and being with her daddy.

We are hopeful that there will be a cure found in her life time and that she will be able to live a full and happy life. Please help find a cure by donating to Cystic Fibrosis or joining our walking team. 90% of your donation goes directly to finding a cure.

You can donate or join our walk on behalf of Jayden’s Team by clicking the link below.

www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=5858&idUser=145165

Our Cystic Fibrosis Great Strides walk is on June 6, 2009, at 9 am, at Seven Peaks.

Thanks for every ones support!